The National Center for Health Statistics (NCHS) is providing answers to frequently asked questions (FAQs) about the release of provisional data on deaths due to COVID-19, as well as questions about the processes for coding deaths and guidance provided to certifiers on how to report deaths due to COVID-19 on death certificates. Additional FAQs will be added to this page as new questions are received. This page is divided into four main sections: How NCHS Collects and Reports Data on Deaths Due to COVID-19, Surveillance of Deaths Due to COVID-19, Coding Deaths Due to COVID-19, and Certifying Deaths Due to COVID-19.
For more specific information on coding COVID-19, please see the section, Coding Deaths Due to COVID-19.
What are provisional data and how are they different from final mortality data?Please visit COVID-19 Death Data and Resources to find the latest information and links from NCHS.
Why are NCHS provisional COVID-19 death counts different from other sources, such as the numbers reported in the media?
NCHS counts of deaths due to COVID-19 are based on provisional data which may not yet be complete – especially for more recent time periods – and may change as more and updated information is reported. Counts from death certificates often track 1-2 weeks behind other data because:
For more about NCHS provisional death counts, please see this fact sheet: Understanding the Numbers: Provisional Death Counts and COVID-19 pdf icon
What information does NCHS provide on race and ethnicity for COVID-19 deaths?What are unweighted and weighted population distributions by race and Hispanic origin group, and why do you provide them?
Counts of deaths due to COVID-19 are most likely undercounting the true number of deaths due to COVID-19 because:
Is further analysis being done to figure out the number of deaths due to COVID-19 that may not have been identified?
Yes, there is an International Classification of Diseases, 10 th Revision (ICD-10) code for mortality for COVID-19. The code is U07.1.
This is an emergency code that was issued by the World Health Organization (WHO) in January 2020 to identify deaths from COVID-19 and help track the new and evolving pandemic.
The World Health Organization also issued another code, U07.2, for “COVID-19, virus not identified.” Why didn’t NCHS implement this code?
The WHO issued a second ICD-10 code, U07.2, for clinical or epidemiological diagnosis of COVID-19 where a laboratory confirmation was inconclusive or not available. Because certifiers in the U.S. do not typically report laboratory test results on death certificates, NCHS did not implement U07.2 for mortality statistics. When laboratory confirmation is inconclusive or unavailable, certifiers determine and report the causes of death on the death certificate based on medical history, medical records, autopsy report (if available), and other relevant sources of information.
How is COVID-19 coded when it is reported on the death certificate?Terms in the cause-of-death section on death certificates indicating COVID-19 are coded to U07.1. These terms include, but are not limited to:
In addition, if any of the above terms are reported as a “probable” or “presumed” cause of death on the death certificate, the code U07.1 would be assigned. Certifiers can use “probable” or “presumed” for any cause of death if they determine with a reasonable degree of medical certainty that a condition caused or contributed to the death. NCHS regularly accepts these terms when they are used with any condition reported as a cause of death on a death certificate. Any condition reported by the certifier as a “probable” or “presumed” cause of death is assigned the code for that condition.
If “pending COVID-19 testing” is reported on the death certificate, it will not be coded as U07.1 and will require that the certifier provide an update when the test results are available. If an update is not received, NCHS follows up with state registrars on these records.
If COVID-19 is reported in the cause-of-death section of the certificate, but the manner of death is “pending,” U07.1 is tentatively assigned for the term “COVID-19,” but these records also require follow-up.
If the certifier reports “COVID-19 exposure” or “possible COVID-19 exposure,” the code U07.1 is not assigned. NCHS does not code exposures. A person may be exposed to COVID-19, but that does not mean the patient became infected with the virus, developed the disease (exhibited its signs or symptoms), or that it was a condition that caused or contributed to death. Certifiers are asked to only report medical conditions that they determine to be a cause or contributing cause of death on the death certificate.
More general terms like “Coronavirus” without an indication of the specific strain will be coded to B34.2, “Coronavirus infection, unspecified site.” NCHS will query the state registrar about records with the B34.2 code. If the state registrar confirms that it was not the 2019 strain, the code will remain B34.2 and the death will not be counted as due to COVID-19. If the state registrar indicates that it was specifically COVID-19 that caused or contributed to the death, the code will be changed to U07.1.
What if COVID-19 is reported in Part II, other significant conditions contributing to death, of the cause-of-death section on the death certificate? How are these records coded?
If COVID-19 is reported in Part II, the term will be assigned the U07.1 code and the death will be counted as due to COVID-19. Part II is for reporting other significant conditions that contributed to the death, but are not a part of the sequence of conditions directly leading to the death in Part I. For more information, see the 2003 U.S. Standard Certificate of Death pdf icon and Q&A on what is officially counted as a COVID-19 death.
What terms should medical certifiers use to identify COVID-19 as a cause of death on the death certificate?
If the medical certifier determines that COVID-19 is a cause of death, it should be reported on the death certificate using standard World Health Organization (WHO) terminology, such as Coronavirus Disease 2019 or COVID-19.
As is the case with all causes of death, it is important for the certifier to be specific when reporting COVID-19 on the death certificate. If the certifier intends to refer to the 2019 strain, it is critical that they use terminology that indicates the 2019 strain. Only then will the ICD-10 code for COVID-19 be assigned (U07.1).
More general terms like “Coronavirus” without an indication of the specific strain will not be automatically coded to U07.1; these records are being followed up on and may result in a query to the certifier for clarification.
How good is cause-of-death information on death certificates?Death certificates are our nation’s official source of data about mortality and causes of death, so the quality of this information is critical. In vital statistics, the causes of death are determined by a physician or other certifier and documented on the death certificate . The quality of cause-of-death data depends on certifiers providing complete and accurate information.
Complete means that the cause-of-death statement describes a clear chain of events from the immediate cause of death to the underlying cause of death, that other conditions that contributed to death are reported, and that the information provided is specific. The WHO defines the underlying cause of death as “(a) the disease or injury which initiated the train of morbid events leading directly to death or (b) the circumstances of the accident or violence which produced the fatal injury.” (1)
Current estimates are that about 20-30% of cause-of-death statements have issues with completeness. For example, if a patient died from acute respiratory distress syndrome (ARDS) and the certifier reported “acute respiratory distress syndrome” on the death certificate, this would be an accurate statement. However, this statement would be incomplete because ARDS can be caused by many different conditions. For this cause-of-death statement to be complete, the certifier would need to specify the condition that led to ARDS as well. In this instance, the certifier should report both ARDS and the underlying cause of death in the cause-of-death statement on the death certificate. While not every cause-of-death statement is complete, this does not mean it is inaccurate.
Accurate means the certifier reported the correct conditions as causes of death. Note that the cause-of-death section of the death certificate does not merely ask what conditions the decedent had, but which of those conditions caused or contributed to death. Because there are no objective measures of what caused a person’s death, cause-of-death statements are a medical opinion. Even an autopsy may not reveal an obvious cause of death, and the certifier must still decide which conditions to report as causes of death on the death certificate. Evaluating the accuracy of cause-of-death statements from death certificates is very difficult, as this requires external data sources that are usually not linked to death certificates, often require manual record review, and need to allow for reasonable differences in medical opinion.
NCHS relies on certifiers to use their best medical judgment in determining the causes of death based on their knowledge of the case and available information, such as medical records or laboratory testing. If the certifier determines that a condition caused or contributed to death, it should be reported on the death certificate. Certifiers can use “probable” or “presumed” for any cause of death if they determine with a reasonable degree of medical certainty that a condition caused or contributed to death. If a certifier determines that a condition did not cause or contribute to the death, it should not be reported on the death certificate.
More detailed information on reporting COVID-19 as a “probable” or “presumed” cause of death, as well as situations in which it is not appropriate to report COVID-19 on the death certificate, can be found in NCHS’ Guidance for Certifying Deaths Due to COVID-19 pdf icon and in the following Q&As below.
What is a “probable” COVID-19 death and how is that determined?Because there are no objective measures of what caused a person’s death, cause-of-death statements are a medical opinion. Even an autopsy may not reveal an obvious cause of death, and the certifier must still decide which conditions to report as causes of death on the death certificate. When laboratory confirmation is inconclusive or unavailable, certifiers determine and report the causes of death on the death certificate based on medical history, medical records, autopsy report (if available), and other relevant sources of information. The physician or other certifier should always use his or her best medical judgment in determining and reporting the cause(s) of death on death certificates. It is the certifier’s responsibility to make these determinations.
For any cause of death (not just COVID-19), the terms “probable” or “presumed” may be used if the certifier determines within a reasonable degree of medical certainty that a condition was a likely cause of death. NCHS accepts these terms for any condition reported as a cause of death on the death certificate. There is no requirement for certifiers to use these terms, and certifiers should not report conditions that they determine are not likely causes of death. For more information, please see the Physician’s Handbook on Medical Certification of Death pdf icon .
NCHS has provided the following guidance on certifying deaths due to COVID-19 pdf icon :
When determining whether COVID–19 played a role in the cause of death, follow the CDC clinical criteria for evaluating a person under investigation for COVID–19 and, where possible, conduct appropriate laboratory testing using guidance provided by CDC or local health authorities. More information on CDC recommendations for reporting, testing, and specimen collection, including postmortem testing, is available from: https://www.cdc.gov/coronavirus/2019-nCoV/hcp/clinical-criteria.html and https://www.cdc.gov/coronavirus/2019-ncov/hcp/guidance-postmortem-specimens.html….In cases where a definite diagnosis of COVID–19 cannot be made, but it is suspected or likely (e.g., the circumstances are compelling within a reasonable degree of certainty), it is acceptable to report COVID–19 on a death certificate as “probable” or “presumed.” In these instances, certifiers should use their best clinical judgement in determining if a COVID–19 infection was likely. However, please note that testing for COVID–19 should be conducted whenever possible. (p.2)
What about the case of a known or possible exposure to COVID-19? Should certifiers report these on the death certificate?
Certifiers should not report “exposure to COVID-19” or “possible exposure to COVID-19” on death certificates. A person may be exposed to the virus, but that does not mean the patient contracted or became infected with the virus, developed the disease (exhibited its signs or symptoms), or that it caused or contributed to the death. Certifiers should only report medical conditions that they determine to be a cause of death on the death certificate.
Conversely, COVID-19 should not be listed on the death certificate if the certifier determines it was not a likely cause of death.
Should the certifier report COVID-19 on the death certificate for every case with confirmed positive test results for COVID-19?
No, COVID-19 should not be reported on the death certificate as a cause of death for every case with confirmed positive test results for the virus that causes COVID-19. Certifiers should report COVID-19 on the death certificate only if they determine that the person developed the disease (exhibited its signs or symptoms) and that COVID-19 caused or contributed to the death.
The cause-of-death section of the death certificate does not ask certifiers to report all conditions the decedent had. Certifiers should only report those conditions that they determine caused or contributed to the death. They should use their best medical judgment in determining which conditions to report as causes of death based on their knowledge of the case and available information, such as medical records, laboratory testing, etc.
What about the possibility of false negative tests? How should certifiers report the cause of death if they think the test results for COVID-19 were a false negative?
There is the possibility of false negative results when testing for the virus that causes COVID-19. If the certifier believes the test results were a false negative and has determined using their best medical judgment that the patient likely had COVID-19 and it was a likely cause of death, they may report COVID-19 in the cause-of-death section of the death certificate as “probable” or “presumed.”
Should certifiers specify on the death certificate that test results for COVID-19 were negative or COVID-19 was not a cause of death (for example, report “COVID-19 testing negative” or “not COVID-19”)?
No, laboratory test results themselves are not reported on death certificates. Only causes of death should be reported on death certificates.
If the test results are negative and the certifier determines that the patient did not have COVID-19 and it was not a cause of death, they should simply not report it on the death certificate.
If the certifier does not report COVID-19 as a cause of death on the death certificate, NCHS will not code COVID-19 or attribute the death to COVID-19.
How can certifiers account for pending test results when completing a death certificate?If test results are still pending at the time the death certificate is completed, certifiers can submit the death certificate with “COVID-19 test results pending” or other similar language in the cause-of-death section. Note that these terms will not be coded to U07.1.
When the test results are available, the certifier should determine the cause(s) of death and update the death certificate through the state vital records office. The updated certificate will then be submitted to NCHS. If an update is not received, NCHS will follow up with the state registrars.
What are your recommendations for using post-mortem testing and autopsies to detect potential deaths due to COVID-19?
NCHS recommends post-mortem testing of persons with known or suspected COVID-19 whenever possible. Guidance for post-mortem testing can be found in CDC’s interim guidance for collection and submission of postmortem specimens from deceased persons with known or suspected COVID-19.
Healthcare professionals considering post-mortem testing for the virus that causes COVID-19 should work with state and local health departments to coordinate this testing through public health laboratories, or they can work through clinical laboratories to use diagnostic testing authorized by the FDA under an emergency use authorization (EUA). Healthcare professionals interested in testing autopsy tissues through the CDC should contact their state or local health department.
NCHS also encourages the use of autopsies, whenever possible, to aid the certifier in determining the cause(s) of death.
Where can I find more information, resources for training, and guidance on COVID-19 and cause-of-death certification in general?
Resources are available and being updated on the NCHS website: COVID-19 Data from the National Center for Health Statistics
Here is a current list of resources:
Death Data, Resources, and Alerts
COVID-19 Testing Guidance
Guidance for Certifying Deaths Due to COVID-19
Guidance for Certifying Deaths Due to Natural Causes (General)